Every year since 1997,
the International Alliance has celebrated 21 June as the global day of
recognition of ALS/MND – a disease that affects people in every country
of the globe. 21 June is a solstice – a turning point - and each year
the ALS/MND community undertake a range of activities to express their
hope that this day will be another turning point in the search for
cause, treatment and cure of this awful disease.
Members of the International Alliance undertake a range of activities to
recognise ALS/MND. Many organise meetings of people diagnosed with ALS/MND
and carers, some organise social events, meetings of Boards of Directors,
undertake fundraising activities or simply reflect on being a part of
the world wide fight against ALS/MND.
Why is it important?
Global day is important because it is one day that every member of the
International Alliance has in common to reflect their dedication and
role in the global fight against ALS/MND. Many countries already have
awareness days, weeks and even a month of recognising ALS/MND and
stimulating a period of intense effort to promote awareness. But this
one day allows us to recognise that we are not alone in our fight
against ALS/MND, and that patients, carers, former carers, scientists,
health care professionals, volunteers and many, many others are all part
of this fight.
Who can be involved?
Global Day is an event that knows no boundaries, so everybody can be
involved. Any event (big or small), any activity, any act, can be a part
of raising awareness of ALS/MND.
What can you do?
On the day, You can do anything!
You could:
· Tell 10 people you meet about ALS/MND
· Have a dinner party and charge friends to come and donate the funds to
your local ALS/MND organisation
· Write about ALS/MND to your local newspaper and tell your story
· Print the Global Day poster and stick it around your workplace. Click
here for a pdf version, or here for a .doc version
· Have a picnic with your ALS/MND Association
· Ring up and volunteer for your ALS/MND Association
· Have a meeting and get a scientist to come and talk about research and
ALS/MND
· Donate some money to your nearest ALS/MND Association (locations at
www.alsmndalliance.org/directory/index.html)
· Work with a person with ALS/MND and help them tell their story of hope
to a journalist for publication
· Buy some cards from an ALS/MND Association and send them to ten of
your friends, and ask each of them to tell ten more people about ALS/MND
Just talk up ALS/MND!
And then tell us …
Send us an email about what you did, and we will share it with other
organisations and people through the internet.
Remember …
The fight against ALS/MND is a global fight. ALS/MND affects people in
every country in
the world, and takes no notice of race, colour, faith or economic
status. It is indiscriminate,
and every diagnosis affects a much larger circle of family, friends,
relatives, workmates
and others.
JOIN THE FIGHT – DO SOMETHING
ON GLOBAL DAY
TO SPREAD THE WORD
21 JUNE – ALS/MND GLOBAL DAY